From the article: Scleritis
Scleritis is a severe, painful, and potentially blinding inflammatory disease of the white portion of the eye, or sclera. Have you been diagnosed with scleritis? Share your experience with scleritis with others, including your first signs and symptoms of the disease. Share Your Experience
Posterior Scleritis
- Worst condition ever. I have no underlying condition. I have been on Prednisone for 15 months, and am also on Methotrexate injections and Remicade infusions...they have been my saving grace. I see the best ocular immunologist in the world (literally) - Dr C. Stephen Foster in Cambridge, MA. He has saved my eyesight. The last year and a half has been hell, but if I didnt live 30 miles from Dr Foster's clinic, I have no doubt I would be blind in my right eye.
- —Guest Melissa S.
Scleritis for a decade
- As I was reading, it makes me so sad to know that scleritis has no cure. The worst flare-up of my life was 12/11. I have been on prednisone since, 80mg-0. Just yesterday (05-10-12) I had another flare-up, so more prednisone plus methotrexate. The side effects of the prednisone are horrible. I gained 20 lbs since December, chest pain, knee proplems, esophagus problems, gastritis. But the doctors say I am perfectly fine. I have been off work and I don't what to do anymore. I hope someone finds a cure for this miserable pain.
- —Guest Maria Gentile
Maintaining scleritis with medication
- I am 32 and have had scleritis in both eyes with flare-ups for the past 4 years. It took about 2 years to figure out the right medication to keep it at bay, but this is what has worked for me: 100 mg of Azathioprine daily. I have had absolutely no side effects with this medication, although I do go to the lab for blood work every 6 weeks. When I do have a flare up, Durezol works faster than any of the other steroid drops I have tried. Although my eye pressure goes up on Durezol, it doesn't raise enough to make the medication a problem. Scleritis is SUPER ANNOYING and my heart goes out to everybody posting on here.
- —Guest Sarah
One year
- I was diagnosed one year ago. It's back again now, in the other eye. Remember, although it hurts like hell, it won't last forever! I use an ice pack, especially before bed, and take ibuprofen to help with pain (no drops really worked for me).
- —Guest KK
Posterior scleritis - first time
- Mine started with vitreous flashes, bilateral eye pain and vision loss in Nov. 2011, immediately following a minor surgery. I was diagnosed within one month (confirming ultrasound), which I understand is fairly fast. I had warped retinas, edemas, constant pain (mild to severe), one retinal tear, and purple and puffy areas under both eyes. All testing for underlying systemic disease has been negative, including TB, MRI, HLA B27, HLAB51, Lupus, ANA, everything you can think of. I believe (or prefer to hope) that it is an allergic reaction to the general anesthesia used during the surgery. I was started on 60mg prednisone in Dec. 2011, now (Feb. 2012) down to 30mg prednisone, but have had “break throughs.” I just started on methotrexate on top of the prednisone. This is not how I envisioned spending my 55th year. The prednisone makes me manic, which is good for the kitchen, but not for relationships at home and work.
- —Guest gail 55
Ankylosing Spondylitis - Scleritis
- Same story as many others. Had many joint complaints including lower back that went misdiagnosed for decades. Then when I turned 51, scleritis set in left eye. Oral prednisone worked temporarily. Humira worked better, but took Remicade + injected MTX to completely control. Now I just have joint damage pain and morning stiffness... along with low vision and head pain. Depression too. Gee, I'm a real prize.
- —Guest Brian
Little confused
- Hi. Frst I got scleritis back in July in my left eye. It seems to be under control with Froben and steroid eye drops, but suffer now with blurred vision. The question is does anybody know if the blurred vision clears or is that it? Does it get more blurred with each flare up?
- —Guest Chris
Scleritis
- I was diagnosed with scleritis about two years ago. I was put on Imuran and it seemed to help, but I got extremely sick and had to go to the E.R. My liver or gallbladder was being damaged by the medicine (that is what the doctor thought.) So I immediatly stopped taking the Imuran. My scleritis had gone into remission for over one and a half years...until last night. I hardly slept a wink overnight due to the overwhelming pain. I dont know what to do now.
- —Guest Paul
Lucky case
- I was diagnosed with scleritis when I was 14 years old, and judging by others stories, I was one of the lucky ones. It took doctors and specialists about two weeks to diagnose it and find an appropriate treatment, and they were the worst weeks of my life. At first, I thought I just had an irritated eye.But then I woke up one day with a swollen eye, and pain along my brow line that was intense, like I was repeatedly being smashed in the head with a hammer. But then the doctors figured out what it was, prescribed a heck-load of anti-inflamatories and eye drops. A few weeks later, and the pain, swelling and infection was gone. I too was told it never really goes away. Like asthma. It's always there, and I may, from time to time, have an "attack". I did the following year, about the same time, but they got onto it much quicker so I was better in a matter days. I am still a bit senstitive to bright lights, and have to be careful to keep my immune system up to avoid another attack
- —Guest Susie
There is hope
- I was recently diagnosed with scleritis,I have had probems with my eye before,the pain when trying to look at something was sooo very painful,I've taken oral steroids to no avail, But the Dr.gave me a new drug calledDUREZOL, I thank GOD for. This med, in three days I felt like a new person with a brand new eye. It really worked.
- —Guest Ginger williamson
Scleritis
- I have had Scleritis for 5 yrs now, actually I have it right now in my right eye..I'm taking 60mg of predisone each day to get rid of it,its helping but takes some time for it to heal. I never in my life thought your eye could have pain like what Scleritis causes on a scale of 1-10 it was for sure a 10 !! had the worst eye stain you can imagine when looking at thing up close..it feels like you got soap in your eye and someone is poking the eye with a needle and like you got socked in the eye as all the mucles around the eye gets involved... Thanks for reading... Gail
- —Guest Gail
just diagnosed, cont.
- I was also diagnosed another non-steroid drop called lotemax today by my new doctor and he says it will make me feel alot better, but to try Acuvail again on my right eye, i know when i stop taking these drops, it flares up again, but since Acuvail makes my eyes feel better, and theres no steroid or antibiotic in it, i think its a great method to make your eyes less red and puffy and painful. I would not recommend Prednisone to anyone long term, all it has done for me is put a band-aid on one problem while leaving my immune system weak and susceptible to another one
- —Guest andrea
Just diagnosed
- I was recently diagnosed with scleritis after my left eye became puffy, red only on one side of the eye, and extremely light sensitive and painful to look around. Steroid drops work but aren't so good for you long term, tobramycin. I used this for 10 days it went away and then came back. Saw a different doctor, who gave me a great alternative called Acuvail, this is a none steroid comes in one time use vials so there are no preservatives. This worked to but then it popped up in my other eye! I forgot to mention when it came back on my left eye, it was also hemorrhaging , as if it was bleeding outside of the brown part of my eye (cornea?) anyway now that it's in my right eye my doctor said it could be an auto immune disease. I'm worried this could be from taking a lot of prednisone for my asthma and nasal polyps before I had better health insurance and I couldn't afford advair... So be careful with prednisone those who are taking it, yes it makes you feel better now - but at what cost
- —Guest Andrea
Scleritis & Episcleritis
- I was just told have scleritis in my left eye and episcleritis in my right. This has bee ongoing for about two years now, but seems to have gotten worse in the past few months. When it first started the opthamologist told me it was an allergy and I was taking all kind of drops for allergies. At first when I started taking the steroid drops things cleared up, but then they stopped working. I am wondering if you can get immuned to the drops. Next the doctor wants to put me on an oral steroid. I hope this works because this is real scary. Thanks for reading.
- —Guest Scleritis & Episcleritis
Scleritis scarey
- I went to the eye doctor (American Best) to get new contacts and was advise that I had an infection in my right eye due to not properly cleaning my contacts, so she prescribe meds for the infection. So 2 days later it was still red and painful, I thought it was my sinus. The pain got worst in my eye so I went to Ophthalmology dept at the hospital and a series of test were done. I now have scleritis in my eye, which may have been caused by autoimmune disease so they took blood and gave me a chest x-ray, I waiting on the result. They did give me Motrin 800 to take 3 times a day (but not) and Homatropine HBR5% eye drops, and my eye has been feeling no pain, but it is still red and vision is still blurred. I go back Thursday for result, I will tell you guys what the said. They are checking to see if I have Lupus, Sarcodoses, Rheumatoid arthritis, etc. I don't have none of these and I'm not claiming this either.
- —Guest Kimco
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